As I am beginning to see the co-payments for my medications mount up, I know that many other people undergoing treatment are facing the same issue. Many of the folks I have met who have Hepatitis C, are putting off the decision to undergo treatment because of the cost of the medications. Others are waiting for the chance to screen for research trials of new drugs because the drug companies running the trials cover the cost of the medications and the monitoring care.
There are resources available to help with the cost of medications. I mentioned a few that are run by the drug companies themselves in this post. There are also a wide range of other programs run by both pharmaceutical companies and private foundations. A list of some of these programs follows. I hope it is useful.
Patient Access Nework Foundation
https://www.panfoundation.org/
1-866-316-7263
Assists patients who cannot access the treatments they need due to out-of-pocket health care costs including deductibles, copayments and coinsurance. Up to 4K yearly in drug/co-pay assistance. Patients can apply on line or call the phone number listed above.
Healthwell Foundation
www.healthwellfoundation.org
1-800-675-8416
Addresses the needs of individuals who cannot afford their insurance copayments, premiums, coinsurance or other out-of-pocket health care costs.
National Organization For Rare Disorders (NORD)
www.rarediseases.org
1-800-634-7207
Assists uninsured or under-insured individuals in securing life-saving or life-sustaining medications.
Partnership For Prescription Assistance (PPA)
www.pparx.org
1-888-477-2669
Offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. Includes assistance for the uninsured.
Patient Advocate Foundation’s Co-Pay Relief Program
www.copays.org
1-866-512-3861
Provides direct co-payment assistance for pharmaceutical products to insuraed patients (including Medicare Part D beneficiaries) who financially and medically qualify.
Chronic Disease Fund
www.cdfund.org
1-877-968-7233
Patient will have to call monthly to see if they have funds. Funds are based off individual donations.
Families USA
www.familiesusa.org
1-202-628-3030
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans.
Modest Needs Foundation
www.modestneeds.org
(415) 956-9395
Modest Needs is an award-winning public charity with a simple but critical mission: we work to stop the cycle of poverty BEFORE it starts for the low-income workers whom conventional philanthropy has forgotten.
Needy Meds
www.needymeds.org
1-978-281-6666
NeedyMeds is a non-profit with the mission of helping people who cannot afford medicine or healthcare costs. The information at NeedyMeds is available anonymously and free of charge.
Patient Services Inc. (PSI)
www.uneedpsi.org
1-800-366-7741
Assists patients in locating health insurance policies. Provides health insurance premium assistance (including COBRA) and co-payment assistance (including helping satisfy Medicare Part D true-out-of-pocket.
Advocacy Attorney through Crohn’s Foundation
Email: patient_advocate@sbcglobal.net
1-860-674-1370
Patient Advocate Foundation
www.patientadvocate.org
1-800-532-5274
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.
OTHER FINANCIAL ASSISTANCE PROGRAMS
Chrohn’s & Colitis Foundation of America – www.ccfa.org - 1-800-932-2423
American Cancer Society – www.cancer.org – 1-800-227-2345
Brain Tumor Society – BTS Cares – www.tbts.org – 1-800-770-8287
Cancer Care – www.cancercare.org – 1-800-813-4673
Leukemia and Lymphoma Society – www.LLS.org – 1-800-955-4572
Lymphoma Research Foundation – www.lymphoma.org – 1-800-500-9976
National Brain Tumor Foundation – www.braintumor.org – 1-800-934-2873
National Marrow Donor Program – www.marrow.org – 1-888-999-6743
I am a 57-year-old white American male infected with Hepatitis C. I am involved in a controlled medical research study by Roche Pharmaceuticals of an experimental Polymerase Inhibitor (RO5024048 also known as RG7128) drug therapy for the virus. This document is the story of my illness and the experience of treatment. My lovely and pretty damn wonderful wife will be contributing her take on the experience as well.
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